In Honor of Autism Acceptance Month

Autism Acceptance Supports Parents and Families

A kid playing with blocks wearing headphones
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A daughter and mother painting. The daughter is on her mom's lap wearing headphones

Autism acceptance supports parents and families to find joy, strength, and support in the journey.

If you are a parent of a child with autism spectrum disorder (ASD), you may wish others understood your family better. While there are some differences in your daily routines, parents and caregivers share many of the same hopes: You love your child very much. You want them to be safe, understood, and accepted. Most of all, you want them to have a happy life.

Raising a child with autism can be hard, but it is part of your everyday life. Autism shapes how you plan your day, celebrate small wins, and think about the future.

A Day in the Life of a Family Impacted by Autism

If you care for someone with ASD, your days can be long, tiring, and stressful. Mornings often start early. Getting ready takes time. It is not as simple as waking up and heading out the door. Clothes have to feel right. Food has to be something your child can eat that day. Each step needs to happen in a certain order. Even then, some mornings are still hard. Sometimes the day can feel like too much before it even begins. For many families, structure and support services help reduce stress by taking things step by step. 

Cody is one Trillium member with autism. He lives at home with his family in Onslow County. He receives Innovations Waiver services and Tailored Care Management through Trillium. But other families are waiting for Innovations Waiver services. Right now, there are 20,150 North Carolinians on a waiting list called the Registry of Unmet Needs. The number of people waiting for ASD services is 9,756. Just in the Trillium region, there are more than 5,000 individuals waiting. About 3,150 of them have autism. Cody’s family of six is thankful for the services he receives.

“Our family balances a lot of moving pieces to make sure Cody is safe and cared for, while also keeping up with everyday life,” his mom, Holly, says. “Cody is very routine-based. He uses tools to help with his schedule and needs a lot of prompts and reminders.”

Evenings can be hard, too. Dinner is not always easy. Textures, smells, and new foods can feel like too much. In fact, research shows that up to 89 percent of children with autism experience feeding challenges, including strong food preferences and sensitivities. These challenges can affect nutrition and may also impact sleep, digestion, and overall well-being. Small things at dinner time can turn into big feelings. Your child is not being difficult—they are just tired. Difficult moments are not isolated. They are often connected and build on each other throughout the day. Bedtime usually follows a set routine that helps your child feel calm and ready to rest. These routines are important. Even then, sleep does not always come easily. By the end of the day, you can see how much your child has handled. And the next day, you start again.

a girl with a yellow sweater covering her ears

There are also times when your child may get very upset and lash out. We all may feel frustrated when we can’t find the words to say what we need or want. Your child may cry, yell, or act in ways that seem sudden to others. But these moments are not about bad behavior. They are your child’s way of trying to communicate when their feelings are too big or too hard to explain.

Holly shares that sometimes Cody will say, “Too many words!” when he feels overwhelmed and cannot take in everything around him. She explains that this does not mean he is giving up. It means “the timing or the delivery might not be meeting his needs.”

As a parent or caregiver in these times, you do your best to stay calm, listen, and help your child feel safe until the moment passes.

If you have a child with ASD, going out in public can be hard, too. It breaks the routine. Noise, bright lights, and busy places can feel like too much. Even a short trip takes planning. Sometimes you may need to leave quickly. There may be moments when others stare or do not understand. Those moments can feel heavy. As a parent, you want people to see your child with kindness. Your child is not misbehaving—they are trying to say, “This is too much.”

Building a Foundation of Acceptance

Picture of Cody father and mother smiling to the camera

Building a Foundation of Acceptance for more joy and connection. Even with the hard times, there are also beautiful moments. Your child may play the same song again and again because it makes them happy. They may line up toys in a neat way that helps them feel calm. After a hard moment, they might reach for your hand because you are their safe place. And when they laugh, it is real and full of joy. These moments matter. They show your child’s strengths, creativity, and love. For Cody, he enjoys making video clips of The Wiggles, his favorite TV show.

Progress may look different from what people expect. It might mean learning a new skill, doing something on their own for the very first time, or finding new ways to communicate. Holly shares that many of Cody’s goals focus on his health, safety, and learning how to speak up for himself. He is also working on ways to handle change and big feelings. These are important steps forward, even if they seem small to others.

Trillium is proud to champion acceptance and everyday support for individuals with autism and their families. Acceptance should go hand in hand with meaningful supports that help individuals pursue their passions and fully connect with their communities. When acceptance is shared and practiced—and paired with the right services—these moments of inclusion, connection, and joy are more in reach.

“Cody’s Innovations Waiver has been an important part of helping him live at home and have his needs met,” Holly says. He receives Tailored Care Management, Respite and Community Living and Support services, and meal delivery. He also uses TULA to help him stay on track all day. 

To Holly and other parents like her, Autism Acceptance Month is a time for others to gain understanding, patience, and respect. 

“(Cody’s) world and choices are just as important as anyone else’s,” Holly says. 

Trillium understands that your child is more than just a diagnosis. They are a person with their own needs, strengths, and joys. Autism is just part of their story—and part of your family’s story—but it is not the whole story.

In addition to TULA, Trillium also supports the use of the Attend Behavior app as a new solution for children and families with ASD, attention deficit hyperactivity disorder (ADHD), and intellectual/developmental disabilities. Visit the Attend Behavior website for more information.

We hope parents, caregivers, and members will visit My Learning Campus to get free online training and tips. Courses help improve your well-being, provide solutions, and assist you in recognizing your (or your child’s) abilities. Course topics include updates to service offerings, such as the Innovations Waiver, how to reduce stress, and more. 

If you have questions or need help, call the Member and Recipient Services Line at 1-877-685-2415.
 

Disclaimer:

This blog is for educational purposes only. Please speak to your doctor about any health concerns.